The 17th Annual debra of America Benefit will be hosted from 6:30 p.m. to 9:30 p.m. on Monday, Nov. 16 at the world-renowned Solomon R. Guggenheim Museum in New York City. The evening of honors and celebrations will feature an exclusive performance by iconic former American Ballet Theatre (ABT) Principal Dancer, Julie Kent, along with other professional dancers. Kent is the only American ballerina to have won the acclaimed Prix Benois de la Danse.
Proceeds from the benefit will go directly to supporting people living with Epidermolysis Bullosa (EB), a painful, often fatal, and always debilitating rare genetic disease that affects 1 out of every 20,000 births in the United States. Those born with EB are often known as “Butterfly Children” for their extremely fragile skin.
A ticket to this premiere event will include a cocktail and hors d’oeuvre reception by Restaurant Associates in Frank Lloyd Wright’s famed Solomon R. Guggenheim Museum Rotunda, a 100-item silent auction and a DJ set by platinum-selling and chart-topping singer/songwriter Kate Nash. The evening will honor Julie Kent, recently retired American Ballet Theatre Principal Dancer and HANIA by Anya Cole Brand Ambassador (EB Awareness Award); John F. Crowley, Chairman & CEO, Amicus Therapeutics, Inc. and National Board and Executive Committee Chair, Make-A-Wish Foundation of America (Corporate Hero Award); Phil Silvestri, Managing Director and Chief Creative Officer, Havas Worldwide Tonic (Partners In Progress Award); and Arlene Pessar, Founder of debra of America (The Inaugural Founder’s Award).
Tickets to the benefit range from $225 to $1,500, with individual ‘Benefit Only’ tickets beginning at $225 and ‘Benefit + Ballet’ tickets beginning at $325. A ‘Young Leadership’ ticket (35-and-under) begins at $125. The benefit is open to all guests. Purchase tickets or make a donation online at: debra.org/benefit, by email: firstname.lastname@example.org or by phone at 212-868-1573.
The 17th Annual debra of America Benefit’s Title Sponsor is Mölnlycke Health Care. Additional sponsorships are provided by Scioderm (Lead), Hollister (Benefactor), Capstone Partnership (Patron), Fibrocell Science (Patron), McKesson Patient Care Solutions (Patron), Rosen, Livingston & Cholst LLP (Patron), Charles Schwab (Supporting), HANIA by Anya Cole (Supporting), New York Family (Media), UBER (Transportation) and Restaurant Associates (Catering). For more information on sponsorships, please visit debra.org/benefitsponsorship.
ABOUT DEBRA OF AMERICA
The Dystrophic Epidermolysis Bullosa Research Association of America (debra of America), founded in 1980, is headquartered in New York City and is the only U.S. nonprofit providing all-inclusive support to the EB community, through funding research for a cure and providing free programs and services for those with Epidermolysis Bullosa (EB). For more information, visit debra.org.
WHAT IS EB?
Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder in which individuals do not produce a protein that allows their skin to adhere to itself. The most well-known and prominent manifestation of EB is blistering or tearing of the skin from friction. The skin fragility is often compared with the wings of a butterfly, so those born with EB are often known as “Butterfly Children.” There is no cure or treatment for EB. Imagine your child suffering from a disease where more than 70% of their body is covered in open sores and blisters. EB afflicts both genders and all racial and ethnic backgrounds. Amazing strides have been made in research and scientists are getting closer to finding a cure. For more information on EB, please visit debra.org/eb.
debra of America
Casey Fitzpatrick, Events & Communications Director